When I was diagnosed with Motor Neurone Disease (MND) in September 2022, my world changed overnight. But I made a promise to myself that I would not let this disease define me. Instead, I would use my voice to raise awareness of this horrid disease.

I was incredibly honoured to be asked to become a Patron of the Mel Evans MND Foundation, a charity committed to funding vital research into MND. 

Since my diagnosis, I have taken part in two clinical drug trials in the hope that, even if they didn’t work for me, they might help researchers move closer to breakthroughs for others. I have also  shared my story widely across social media, in publications, on news channels and on BBC Radio, helping to highlight the realities of living with MND and the urgent need for better treatments and a cure. Along the way I have helped raise thousands of pounds for MND charities.

I also created MND Queens, a supportive community for women living with MND, because I believe no one should face this disease alone. 

From marathons and rugby matches to charity walks, galas and fundraising events, I am passionate about doing everything I can to raise awareness and support others affected by MND while I still can.

Being able to help and stand alongside The Mel Evans MND Foundation means everything to me, and we will continue to fight for greater awareness, research and hope for the future.